Family Doctors can avail of up-to-date information and advice
on the procedures required and practical guidelines to assist
them in supporting the family involved by phoning the
'Information Hotline for Professionals'
at
087-423777
(available 24 hours a day, 7 days a week)
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Family Doctors should ensure that they are fully aware of the facts ,
as well as the myths, about SIDS. ISIDA's training video for professionals
can assist in this area. Be aware of the up to date information on SIDS
and the procedures currently in practice. Specific skills training in
active listening and in how to break bad news and cope with its consequences
on parents and family are especially important.
Situation (i) - An Emergency Call
- If you recieve an emergency call at the time of a sudden infant
death, immediately respond to the call in person. Do not advise carers
or parents to take the child to the hospital themselves.
- Confirm the death and offer a tentative diagnosis with words such
as 'This looks like a Sudden Infant Death, but a post-mortem is needed
to confirm this'.
- Always refer to the child by his/her name and acknowledge the reality
of the child's death to the family.
- If one of the parents is not present at the time, offer to contact
him/her. Offer to contact a relative/friend who will be supportive
of the family at this time.
- Explain to the parents that in all cases of sudden and unexpected
death, the Coroner must be notified and that a post-mortem is essential.
Also explain that the Gardaí (as an agent of the Coroner) have
to enquire into the circumstances of all sudden deaths including this
one, and have the child identified to them (usually by a parent or
close relative).
- Ensure that parents are given the opportunity to spend some time
alone with their child before he/she leaves the home.
- Make the necessary arrangements to transport the child to the appropriate
hospital and offer the parents the opportunity to travel with their
child. Try to speak directly to the Senior Doctor or Nurse at the
hospital A&E Department. Remain with the family until the child
is moved.
- If there are siblings, they will need an immediate and simple explanation
of what has happened and what is going to happen. Encourage parents
to include any siblings in all arrangements and to spend time with
their brother/sister (see ISIDA's booklet 'A Precious Past, A Hopeful
Future.', section 'Children and Grief').
- In the event of parents choosing to take their child home, advise
the Public Health Nurse about this. Provide parents, relatives or
family members with written instructions regarding the care of their
child at home (Appendix C).
- Make arrangements to call again the following day and follow with
house calls for a reasonable period. This will normally be for the
first few months, at least.
- Be prepared to listen and support rather than prescribe. Give appropriate
advice on the suppression of lactation to breast feeding mothers.
- Provide parents/family with a copy of the booklet 'A Precious
Past, A Hopeful Future' (available from ISIDA). Ask the parents/family
if they would like to speak to a SIDS parent. You can arrange this
by phoning ISIDA's Nationwide Support Helpline, and/or give the parents
the number 1850 391 391.
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- Immediately notify the following of the child's death:
- The National Sudden Infant Death Register
- Minicall: 1550 135 135
- Phone: 01 - 8788455
- Fax: 01 - 8787696
- Address: Georges Hall, The Children's Hospital,Temple Street,
Dublin 1.
- The Superintendent Public Health Nurse and Director of Commuinity
Care.
- The Maternity Hospital and Obstetrician attendant at the child's
birth.
These notifications will avoid possible paternal hurt or professional
embarrasment resulting from notification of appointments being sent
to the family by services that are not aware of the child's death.
- Ensure that hte Community Social Worker is aware of the child's
death and liaise with him/her. If the Social Worker has not previously
been in contact with the family, discuss the appropriateness of a
Social Worker's visit to the family at this time with the Public Health
Nurse and the Social Worker.
- Following consultation with the Coroner arrange with the Pathologist
to have the preliminary and final post-mortem reports
made available as soon as possible and ensure that their findings
are conveyed clearly and immediately to the parents.
Situation (ii) - If your first contact with
the family is some time after the death
- Ensure that you obtain full details from the hospital of the events
surrounding the child's death and in the period immediately after
it.
- Take the initiative to contact the parents and offer to visit.
- Always refer to the child by his/her name.
- If there are siblings, they will need a simple explanation of what
has happened. Encourage parents to include any siblings in the grieving
process (see ISIDA's booklet 'A Precious Past, A Hopeful Future.',
section 'Children and Grief').
- In the event of parents choosing to take their child home, advise
the Public Health Nurse about this. Provide parents, relatives or
family members with written instructions regarding the care of their
child at home (Appendix C).
- Be generous with your time and follow with house calls for a reasonable
period. This will normally be for a few months at least.
- Be prepared to listen and support rather than prescribe. Give appropriate
advice on the suppression of lactation to breast feeding mothers.
- Provide parents/family with a copy of the booklet 'A Precious
Past, A Hopeful Future' (available from ISIDA). Ask the parents/family
if they would like to speak to a SIDS parent. You can arrange this
by phoning ISIDA's Nationwide Support Helpline, and/or give the parents
the number 1850 391 391.
- Ensure that the Community Social Worker is aware of the child's
death and liaise with him/her. If the Social Worker has not previously
been in contact with the family, discuss the appropriateness of a
Social Worker's visit to the family at this time with the Public Health
Nurse and the Social Worker.
- Following consultation with the Coroner arrange with the Pathologist
to have the preliminary and final post-mortem reports
made available as soon as possible and ensure that their findings
are conveyed clearly and immediately to the parents.
Remember that the sudden death of an infant or young child normally
affects all who come into contact with it. If you feel that
you would like to talk to someone, ISIDA provides a confidential
Nationwide Helpline 1800 391 391
where you can contact someone who understands and is willing
to listen - you do not have to be a parent or relative.
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